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BBMRI-ERIC is a distributed research infrastructure of biobanks and biomolecular resources. For its Member States, it provides expertise and services on a non-economic basis and facilitates access to collections of partner biobanks and biomolecular resources. BBMRI-ERIC is established for an unlimited period of time.
Offering practical interpretation of new legislations (e.g., FAQ on GDPR);
Monitoring of relevant ethical and legal frameworks in development (e.g., Safe Harbour);
Coordinating replies to relevant public consultations on the European level (e.g., Council of Europe Recommendation CM/REC(2016)6);
Developing tools to support biobankers in their daily work, especially when addressing legal matters (e.g., WIKI legal & hSERN);
Informing about publications & research results, surveys, and relevant meetings;
Providing an ethics check of ELSI compliance for research proposals;
Organising experience sharing and exchanges regarding ELSI aspects (www.europebiobankweek.eu).
User interfaces like Directory, Negotiator etc.;
Machine readable interfaces like Clinical records extraction, sensitive data processing platform;
Middleware like databases for semantics and federations;
Software tools for biobanks.
QU monitoring and audit programme;
QM training and education formats;
QM documentation and assessment.
Methoden & Expertise zur Forschungsinfrastruktur
BBMRI-ERIC shall establish, operate and develop a pan-European distributed research infrastructure of Biobanks and Biomolecular Resources in order to facilitate the access to resources as well as facillities and support high quality biomolecular and medical research. BBMRI-ERIC shall implement its Work Programme as adopted by the Assembly of Members.